Sunday, May 30, 2010

A month in Kepong Centre

After I came home for 10 months from KL last year, I wasn’t satisfied with my life. I wanted a more challenging life. I emailed Ivy from Beautiful Gate to ask her whether they could accept me back. Later I received an email from her, asking me whether I would like to accept a place in Beautiful Gate Kepong.

At that time I didn’t know how Kepong Centre was like, so I preferred Petaling Jaya Centre. Ivy told me that PJ Centre was full and there wasn’t enough helper. As I knew Kepong Centre was only for disabled guys, but a girl friend of mine who used to be in PJ centre was there, so I felt slightly relief.

I was told they have a day time maid to help my girl friend (Pei San) and I. She (the maid) will come during weekdays only. I was slightly worried who will help me during the weekends. I was told again there are volunteers to help me.

I accepted the place, but I was slightly afraid on what was ahead of me, I tried to overcome my fear because I loved challenges.

My parents’ wasn’t eager to let me to go as they were worried, I told them there is a maid to help me but eventually they agreed

On 24th February 2010, I took Air Asia plane for the first time. I heard many scary stories about Air Asia, so, I was quiet frighten to get on the plane. But I took the courage to go on it alone because it was a cheaper flight.

Thank God there was no delay with the flight and everything went well. When I arrived at KLIA airport, my friend, Valerie came to fetched me. She dropped me at PJ Beautiful Gate Centre. Later Uncle Kam Fook (driver) from Kepong Centre came to fetch me.

When I arrived at Kepong Centre, I was happy to see some of my friends’ were outside at the porch. It was nice to see the familiar faces but was specially happy to see Kenneth our leader in Kepong.

I stayed in Kepong Centre for only a month but I notice a lot of things happening there. I was happy that I had a room to myself. Life is very tough as I had to do most of the daily things myself. The maid who was supposed to help me and Pei San didn’t come everyday, instead she comes whenever she likes. So Kenneth called another maid to help me. In the beginning she was keen to help me as days goes by she became lazier but she still helped me. Sometimes when she is away I had to toileting and other things myself which made me very tired.

Despite all the difficulties, I was happy I had some good friends in the Centre. They were friendly and willing to help me despite they are in wheelchairs. They are all very independent. I was glad we could converse in English and Malay. Whenever I need to buy things/food, they would go out to buy for me and for other friends too. There were some shops and eating stalls nearby, they drove their motorized wheelchair out to buy for us. I felt very comfortable when we had lunch/dinner together as we could chit-chat and laugh.

I was working as a telemarketer for three weeks. I was happy with my job as I was exposed in talking to people on the phone. It was very interesting as I got many different responds.

I didn’t intend to come home it because I needed to see a neurologist so I followed my family back (they went to KL for few days). When I came home I fell sick for more than a month. It was already two months I’m at home. I missed my Kepong friends a lot and also my room.

If it’s God’s will, I wish that I can go back there again. When I see all my friends have so much freedom. I hope to have a life like that.

Tuesday, May 18, 2010

A great disappointment

There was the 1st National Boccia Championship held on 8th-10th in KL this month. Since beginning of this year I had been looking forward for to go for this tournament, but to my disappointment I couldn’t go. It was because of my sickness which lasted for more than a month made me wasn’t able to attend my training for the whole of April. So I asked my coach to canceled my name.

I kept thinking why I felt sick at this time where I couldn’t go for my training. I really missed my training and the tournament. I had the loved for Boccia ever since I started playing in early 2000.

I hope I will get to train and play in the coming Paralimpiad in November. My dream is that I hope be chosen for international game one day.

Friday, May 14, 2010

Bookmark pattern

Bookmark pattern

I sold these bookmarks to a my friend of mine, Maureen, in Alor Setar. To me is a simple pattern, but she says it was very beautiful. I was happy she likes them.

Thursday, May 13, 2010

One and a half month

I had the most terrible time of my life two months ago. It was like going to hell. I was in good condition until I got home from KL. I came back was to see a neurologist which I made appointment to see him on Wednesday 24/3/2010.

Dr. Lim was a young, kind and friendly doctor. (It was my first time seeing him). He took time to see and examining me. He also lead me to see his lady boss (Dr Bow) who know more about my sickness. Both doctors spent more than one hour with me.

Because I curious about my brain, I allowed Dr. Lim to do a CT Scan test for me. My test was due on 14/4/2010 but at last I canceled it. I asked him whether there is any medicine for my spasm and he prescribed me a nerve medicine for me

Never did I know that the medicine didn’t agree with my body. When I came home from KL, my body was slightly weak, but after taking the nerve medicine I got weaker and weaker each day. My neck was so weak that I couldn’t lift up my head and it kept dropping down. My neck muscle was very painful. I had to put a board to support my head and had to tie a cloth around my forehead.

My limbs became so weak that I couldn’t do my daily things. Worst of all, I couldn’t walk to the bathroom. Two persons have to carry me. My maid and I had to struggle in the bathroom doing my toileting and bathing. I felt very scary as I thought I couldn’t walk anymore. My maid had to do everything for me. I couldn’t even hold my hp to talk or sms. If I talked on the phone/hp, my spasm would attack me. I felt so frustrated and depressed that I break down and cried.

After I knew it was the cause of the medicine, I immediately stopped taking it

After lifting off the medicine, I had difficulty in sleeping at night because my spasm attacked me. Mum had to sleep with me to massage my limbs. I couldn’t sleep the whole night. Time goes by very slow, hour by hour. I tried to relax myself yet I could not. I couldn’t to move my limbs. I felt as if my whole body was paralyze.

Mum wasn't able tosleep too as she had to massage my limbs. She didn’t complain or scolded me yet she patiently took care of me. Later that week Dad came to sleep with me to relief mum. This lasted for more than one week.

I knew I didn’t put enough faith and trust in God. I felt so miserable that I kept questioning Him when is He healing me?. I guess it’s natural when someone is sick, he/she couldn’t concentrated in prayers. I knew very well that it was my weakness (didn’t put my faith and trust in God during my trails).


Thank God I’m back to my normal self now. I cannot exert myself, if not my spasm will attack me again. I also want to thank God for giving my parents and my maid the strength and patient to care for me during my difficult time.

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