DAPG- Bollards blocking the partway

Tuesday, 2 June 2020


                                       DAPG -Bollards blocking the partway

DAPG- Day At Immigration Department

Thursday, 28 May 2020

DAPG- Day At Immigration Department

My follow up

Tuesday, 19 May 2020

Since my last Psychiatric follows up in March, I haven't been there due to the MCO.  My appointment has to be postponed twice until today 19/5.

Earlier this week, we suggested that mum follow me together, so she can see the doctor in the Outpatient Clinic for her follow up medication. But Janice came up with another idea, as she herself follows me to GH. We took Grab car as she is unable to drive me there, due to parking difficulty.

When we reach the lobby, I was surprised to see there were so many people, like it's back to normal days but everyone's is on a face mask. Before passing through the lobby, there were a few hospital staff taking everyone's temperature. 

Before Janice push me up to the 1st floor, Psychiatric Department, we went to Orthopedic Dept to make an appointment. The past week, my fingers were having pain, as the previous visit the doctor did my trigger fingers.  There were only a few people waiting, so it was fast to have my appointment done. 

Janice wheeled me to Psychiatric Dept, there were many people as some have to stand by the side. Janice left me there as she went to see the doctor (follow up) for mum and her father in-law's medication. I waited around 15mins and my name was called to take my blood pressure.

I waited for the doctor to call me. Everyone waiting has to sit two chairs apart. Some have to stand too. Less than half an hour, an Indian lady doctor called me in. She asked me many questions about my feelings and the medication I'm taking. I told her I wasn't feeling too good and she increased the dosage for my new medication. I also told her my hand (wrists) are always numb and pain. 

Before I left, she wrote a letter for me to see the Neurologist.  When I came out, Janice was waiting for me.

After getting the letter, we went to Neurologies Department (104) to make an appointment. We went inside and there was only one nurse sitting at the desk.  She gave me an appointment date for next month.

 We went down, Janice needs to collect medication for mum. There were a lot of people queueing up to go into Pharmacy, Janice had lined up for her turn.

I waited in the lobby as I wasn't feeling too well. I had hard breathing and heavy head due to crowded people, the hot weather, and was wearing a face mask. I sat under the fan and felt slightly better. Janice took some time at the pharmacy.

When she came out, we took a Grab car and went home. I felt relief that everything was over that morning.

Back to Therapy

Thursday, 21 May 2020

Back to Therapy

I'm eager and keep that I'm able to go OT therapy again after stopping for 2 months due to MCO.

At 10.45 am Janice drop me at Block A (near to OT Dept). there are not many cars today, so it's easy for her to bring me down.  When she pushed me in there were a few staff was talking temperature of whoever walks in.

When I enter in OT reception area, the place was crowded with people (some wheelchair users) making their appointments. While others' were waiting for their turn to go in.

I waited around 10 minutes when Cik Muz (my therapy) called me in. Today there were no other patients in the OT room. It was 1-1 therapy with Cik Muz. I did stretching my hands and my trunk balance. I was happy I had a good exercise today and felt very tired.

DAPG -My Trip to Penang Hill

Wednesday, 20 May 2020

DAPG- My Trip to Penang Hill

DAPG - Unfriendly Tourism Places

Tuesday, 19 May 2020

Unfriendly Tourism Places

DAPG -How Visually Impaired Goes Around

Wednesday, 13 May 2020

DAPG -How Visually Impaired Goes Around

DAPG -Public Accessible Vehicle

Tuesday, 12 May 2020

Public Accessible Vehicle

DAPG -Disabled Parking Space is very important for us

Wednesday, 13 May 2020


DAPG -Disabled Parking Space is very important for us

Uncertainty

Monday, 11 May 2020

Uncertainty

The fear and uncertainty have come into my heart this morning, as I'm going to the dental in Adventist Hospital again.

Upon arriving at the hospital at 9.45 am, there were few people taking their temperature in the lobby. When I went up to the dental department, few people were waiting at the reception area.

I went to ease myself while waiting. I asked God to protect and keep me safe in the toilet. I was thankful HE kept me safe. When I came out, I heard my name was called. This time it was fast as I need not wait too long before my name was called

The disabled toilet was nearby to Dr. Edric's room, I slowly pushed myself there. As I arrived near the door, the nurse came to wheel me in. They were waiting for me. Each time when Dr. treats my teeth, the nurse needs to help me up to their chair.

He discussed with me another top right tooth which is not very strong for now. To save it, he needs to do root canal treatment which will be very costly. I told him I will arrange another day.

I ask him to check my left top tooth which was giving me pain for the past few days. He checked and took photos of my teeth for me to see. He showed and explained to me that my tooth needs filling.

I wasn't that fearful today as he only did a filling for my tooth. It went on smoothly and around 20mins it was over.  By 11 am, I was out of the Dr's room. I did my payment and the next appointment in two weeks' time. Mostly then, I will do my root canal.

Another scary time will be waiting for me in two weeks' time.  Dear God, 

please help me again then.

DAPG - Sir, Can I Ask?

Thursday, 7 May 2020

I would like to share some of my write up about Disabled Access in Penang in 2013 -2014. Three of my disabled friends together myself wrote many articles on how we feel and what we experienced

Our write -up were in pictures form. One of my disabled friend, who was good

at designing pictures, did for us.  

 Sir, Can I Ask?

What A Morning!!!

Monday, 4 May 2020

After the extraction of my teeth last Wednesday 29/4, there was still pain on my gum and my right cheek was swollen. Before the extraction, Dr. Edric told me if the pain continues after 3 days, he asked me to come back. I called up for an and they gave me an appointment on Monday 4/5  

When Janice dropped at the lobby that morning, some people were queuing up to take their temperature before going into the hospital. Staff at the lobby wheeled me up to the dental department. There were more patients' on that day waiting at the reception area.

I waited more than half an hour before the nurse. Again, I didn't know what to expect. When Dr. Edric checked my teeth, another tooth had a small pulse which causes the pain and swelling. He told me it must be extracted too, but have to take an x-ray before carrying on.

Before I went for an x-ray, he gave me an injection. Due to it, my nerves attacked me. I wanted to take my spasm medication but have forgotten I left it in the car. I asked God to take control of my spasm.

While waiting for my turn for the x-ray, I went to ease myself. I asked God to help me while I was in the toilet. I thank HIM for keeping me safe while there.

I waited for sometime before went into the room, I saw there were more patients', parents with young children, young adults, and some elderly patients at the counter area. All of them wearing face masks.

As I was called into the x-ray room, a lady staff handle me. The room was quite small and narrow, luckily my small wheelchair was able to maneuver around. It was a slight difficulty to take the x-ray, but at last, they manage to do so.

The nurse wheeled me back to the Dr’s. room and he showed me my x-ray. He explained to me a few teeth had some problems and need to be treated. After that, he extracted another top left tooth. This time it was easier to extract.

Due to the fear, the nerve in my body attacked again me and I felt not good. Thank God, everything was over that morning. Next Monday I have an appointment again. What will happen then, only God knows!!

Fearful time

Wednesday, 29 April 2020

Fearful Time

Since last weekend I have been getting severe pain again on my right mold tooth. I made a few appointments in GH dental a month ago but was postponed due to MCO. Until this week, my tooth was too painful and my cheek was swollen too. Not only that, the same time my left top tooth which I did filling beginning of this month was in pain too.

Earlier this week I made an appointment for dental in Adventist Hospital.  Thank God, they gave me a slot on Wednesday 29/4. Janice dropped me there alone. Staff at the ground reception saw me, and he wheeled me up to the 5th floor. When I reached there, I saw many staff and patients around the counter. Other patients' were waiting to see their doctors' too. 

While waiting, I was uncertain, and fear creeps in me on what Dr. Edric Yeap would do to my teeth. When I went into the room, we discussed my teeth and agreed to extract both right top teeth as they had given me lots of pain.

Dr. Edric was patient with me, when he started injecting my teeth, my head and limbs started shaking (due to my nerve). His assistance nurse had to hold my head tightly. He had some difficulty with the extraction as the root was too deep. When everything was over, I felt so relieved. But nerve was all over my body and there was severe pain on my teeth.  When I came home, I immediately took my medication for my spasm.

Thank God for giving the braveness to face the extraction ordeal alone. 

Argument

Thursday,  23 April 2020

Being a disabled child, my mum never seems to listen to me advising her in daily things. Telling her good things, like don't eat this food as it will affect her body in pain. Not only about that, but other daily things. Telling her too much will turn out to be an argument. So I would avoid the topic. I love and care for my mum very much, that's why I wanted the good things for her. 

But when Janice advice/tell her things, she will surely listen quietly without arguing. It has always been like that since last time

I feel very frustrated, angry with myself as mum doesn't want to listen to my advice. As I know/feel, parents will not listen to their disabled child, but prefer to listen to their able-bodied child.  This I how I feel.

P/S:  The past few days, I don't have the mood to write. Feel tired, bored with life .. etc..

Another Step Further

Saturday, 18 April 2020

Before I started my Boccia training last year (2019), I thought of how to take a transport to the Spastic Centre.  I have no one to bring me there twice a week.

Janice and I discussed how I was to go on my own for training. We talked about me taking Grab Car to my training. I was happy she encouraged me to use public transport to be independent. I have never used Grab App on my own. Sometime when we needed to use Grab car, Janice would use her App.

When she taught me about Grab App, I found it quite hard to use. Never realize when I learned to use it myself, I found it was not difficult at all

The first time when I tried using Grab car was from GH to my apartment. I was quite afraid of booking the car, afraid of pressing the wrong button. Luckily, I managed to book the car and called the driver and lead him to where I was. I told him I was disabled in a wheelchair and asked him and asked him to help me into the car. When I arrived home, I felt relieved and that I have learned a new thing.

From that day onwards, I used Grab car to my boccia training. Booking the car can be easy after I explored the app more.  Another difficult task was, getting in and out of the car by myself with some help from the driver. I met all types of men and ladies drivers, some were kind-hearted and friends', and others' don't really know how to help a disabled person. So I teach them how to help me.

But my mum gave me a negative outlook on me taking the Grab car.  To her, I was wasting my money on taking Grab car.  Every time I come back from training, she would ask me how much I spent for the transport. As months by, she stopped nagging me when I told her I was enjoying the training and my game. 

Not only I used Grab car to Spastic Centre, sometimes I used it to GH and back home. Also to the shopping mall with my maid

In a great way when I see taking Grab car, as a learning opportunity to be independent in taking public transport. I feel happy and proud of myself as I was taking another step future. 

  

Prison at home

Wednesday, 15 April 2020

Since last month the lockdown started, the general public has difficulty in coping with their daily life staying at home. They have been on the go every day with their work, activities, family outing, etc... But now with the lockdown, they are still able to go out to their morning marketing, buying groceries and other necessities items.  

It's different from my disabled working friends. They faced more difficulty staying at home now every day. Their working place is the only place they mix with colleagues, friends and other people. Some weekends, they may go outings with their family or friends. Other than that, they will only be staying at home

Though I'm working from home daily in front of my computer. As an active person like me who always goes for my exercises /check-ups in GH, my weekly Boccia training, outing with family and my darling and friends. I feel trap at home 24 hours, 7 days a week too. I do feel bored, though I have online things to do. I miss all of my activities. I especially miss seeing my darling. It has been nearly 2 months I didn't meet him.

I just hope everything will be back like usual and everyone will be able to go on with daily life again.

Dear God, please take away COVID-19 completely that life for every in the world will be back to normal again.

Costly Dental

Monday, 6 April 2020

A few weeks ago, my top left teeth have a few small holes, but I didn't bother about it. Until recently, the filling came out and it became bigger. I had pain on my teeth. My appointment with GH dental will be another 2 weeks for the extraction of my other teeth. They don't do fillings for patients. 

Due to the lockdown, G Dental Clinic, I usually visit was also close. Because of that, I have to make an appointment at Adventist Hospital. After calling for an appointment, the next two days Janice took me there. When I arrived at the ground reception, the nurses took my temperature before I went up to the 5th floor where the dental department.

When I went inside, I was slightly surprised as I was the only patient there. I thought there were a few other people. I waited within 10mins, the nurse wheeled me into the room.

Dr. Yeap, a young male doctor treated me. He was kind, gentle and patient treating my teeth. He explained that I had 4 holes for filling upper and lower teeth. Within half an hour I was out from the room. I was glad my teeth were filled, but it was very costly

What to do, it was a private hospital! Thank God there was no more pain on my teeth.

Fearful Thoughts

Sunday, 5 April 2020

At this present moment, mum and I are staying in our apartment without any maid with us. Mum and I together with Janice help are able to handle our place.

Since Julie pass away, mum has been helping me with my daily routine. I, myself will do whatever I can.

Since last week, mum has been taking some "cold" fruits which elderly people are not supposed to take. 

Last weekend, after her morning bath, mum felt her whole back got muscle pull and she wasn't able to get up from her bed. I thought her muscle was just a while, but it was worst than I thought.

When Janice came to see us, mum was lying on the bed and her body was in pain. Not only her back was in pain, she felt nausea and couldn't eat anything at all.

I was in my room feeling frightened and fearful thoughts came to my mind. "Why suddenly she became so serious" Who will help me if she continues to be in bed and unable to get up etc?.  Other bad and negative thoughts played in my mind too

Janice continues to let her eat or drink, but she was unable to. During lunchtime, Janice gave her a nausea table and she rested the whole afternoon. I had lunch alone and felt very lonely as mum and I always eat together. After lunch, Janice came to help me onto the bed to rest.

I was very worried that mum couldn't eat and get up from bed the whole day.  We let her rest afternoon till evening. After her rest, I was relieved that she was able to get up from the bed. Janice gave her some liquid food together medication for her back muscle.

During dinnertime, we felt very happy that she was able to eat regular food, moved and walked like usual again.

I felt relief and thank God for taking away mum’s back muscle pain. She was able to be her normal self again.

Happiness VS Sadness

Saturday, 4 April 2020

Throughout last year (2019), I didn't write much about what was happening. I was very busy with my online sales, OT/Physiotherapy, routine check-ups, activities, outings, boccia training, outstation trips and many more.

Not forgetting about my emotional feelings, I felt up and down even with all my activities. When I was alone in my room, the negative thoughts would attack me.  I kept thinking "why keep taking the medication yet felt the same?”  Regular check-up to Psychiatrists doctor also felt the same. 

When I went for my activities outings etc, I would forget about my problems. After reaching home and back to my room. My feelings, thoughts, and emotions would be the same again.

But I thank God, despite of feeling emotion down, yet I was still active with outdoor activities.

New Year Outing -2019

Sunday,  29 March 2020

                                             

It was New Year's Day (1 Jan 2019).  As it was a public holiday, Teik and family, my darling and I together with a few disabled friends' went for BBQ at the MPPP beach in  Tanjung Bungah.

It was a beautiful and sunny day to see families with children, young, old and couples on the beach.  It was not the same as other beaches. The front of MPPP beach is very good because there is a ramp, which leads us to the shelter area. In front of it, there were steps leading to the beach. 

We had our BBQ there, facing the beach. While waiting for them to set up and BBQ set, I sat there watching the beach and ocean, few of our disabled friends' went down to the beach to collect seashells.

Teik and my darling did most of the toasting the chicken, seafood, etc. The others also join it toasting too. It was really a nice time having a BBQ there. We talked, laughed and enjoy each other company and the food too. 

I especially enjoyed watching the ocean and the people walking and playing on

the beach. I also enjoyed myself with their company.

Another good thing with MPPP beach, there was a big disabled toilet. When I needed to ease myself, I was able to handle myself as it was equipped with railing and bars.

After having a nice time at the beach, it was time to leave. We decided to adjourn to Balik Pulau to visit the Goat's Farm. I felt pleased that MPPP beach has facilities for disabled people.

Never did I knew there was a Saanen Dairy Goat Farm until we reached. I was happy and eager. But something happens to me, which out expected.

                                                     

We needed to park our cars outside and we walked into a pathway to the Goat Farm. It was a sloppy, unlevel and hard surface with small rocks on the ground. When my darling assisted me out from the car and pushed me down onto the sloppy, unlevel pathway.  My wheelchair (small front wheels) hit the hard ground. My whole self fell down onto the ground.  My darling was so scared as he carried me up from the ground.

Thank God, there was only minor scar on my face and on limbs. After my fall, I rested a while, then my darling pushed around to see the farm. As I was in pain on my face, I didn't enjoy much. But I saw a few goats, chickens' and some small cute animals in cages.

After seeing all the animals, we left that place.  We went for a ride in Balik Pulau 

before coming home.

Even though I fell down on New Year's Day, yet it was a great outing for me. I went to  different place of outings.

Thank you, God, for the minor hurt I had during my outing. and a nice, pleasant and enjoyable outing.